20 Ways To Imagine How Fibromyalgia Disorder Feels

Most people do not believe in fibromyalgia, they say everything is in your head. You have also faced those people in your life. At some point, people ask about their disease, so it is our time to explain what fibromyalgia is because they have not experienced what we are experiencing. Fibromyalgia is the hardest thing to deal with people who don’t understand. We asked our online Facebook community ”  Living with fibromyalgia and chronic diseases  ” that says: How do you describe your feeling about fibromyalgia?

Fibromyalgia is a great incentive to live every day. If you wake up and can move, take full advantage. If you wake up and can’t move, then don’t do it. Get some rest, read a book, watch a movie. It may not be what you want, but it is what you have to do for that day. Tomorrow is a new day and may be different from yesterday. Thanks to have tomorrow because many people do not. I know it’s hard to feel that way when you’re in constant agony, but there’s always something good in each day.

There are no words to describe how horrible it is to be a living hell. It makes me feel that I no longer have life. But we have compiled some of the pain descriptions our members tell us below.

This is what the community shares with us:

1.  Imagine the worst flu you’ve had and then multiply that by 10, then imagine that a car has hit or hit you, then think about how exhausted you’ve been and multiply it by 10. And maybe you can imagine how Good day living with Fibromyalgia feels. A bad day really defies all understanding and understanding.

2.   You have run a 10K, with the flu and also cut all the grass with scissors. That kind of pain. But everyone expects you to do it again the next day because you don’t seem sick.

3.  Pain that moves around your body. Choose a place and hold your breath until it passes and then simply move to another place. You struggle to pretend you’re not suffering and try not to scream or just cry. You feel tired, but you can’t sleep just one version of the dream where you listen to everything and become adrenaline fully awake. With your heart pounding and exhausted, come back down if you can. The tips of the fingers and toes sometimes go numb and can not stand the cold. Your muscles contract and twist and try to relax, but not tense, since the headache can be as follows. You have episodes of depression and I personally run away in music or fantasy to deal with a lot. You cannot speak correctly all the time and it is hard for you to think clearly and concentrate. Yes, that’s enough for now. Just an idea

4. Beth W-   makes me feel like a tin man. That is perfect, the tin man who needs to be greased in ALL joints. And someone holding a torch to ALL my sore muscles. With my head in a vice. Yes, that sums it up, what a miserable existence

5. Marjie C  – Makes me feel like a prisoner in my own body! Never knowing what torture is coming

6. Jessica C  : I feel that I have been beaten with a bat, my muscles feel as if they were being torn and pulled, I feel that I have a 2 × 4 that sits on my shoulders all day while I have flu and death sweating…

7. Vickie M   : I feel I have a little elf inside my body running with an ice pick and randomly stabbing my joints and muscles 24 hours a day, 7 days a week.

8. Kimmie G-   As a triple trailer ran over me; as I need my hips to change; it cuts me at the waist because the lower half is simply not friendly; the worst quadrillion of X from the hangover with the worst flu 2 hit humanity and a memory period the size of a knat ……. Otherwise, I feel great!

9  . Tracey W:   I have a ghost who loves to squeeze the parts of my body, as if someone were digging their fingers into your skin and gripping your muscles tightly.

10.   A grip is on your head, a 20-pound backpack weighs on your shoulders, your hips, your knees, your ankles, your feet and your hands, pain. At the tip of that pain is a tickling like when your foot falls asleep … except instead of just your foot, it is over your entire body. His eyes are sore from tension, his skin is sensitive to touch, his nose is sensitive to odors. Lack of restful sleep keeps you stunned and fatigued.

11. Kerryn E: it   ‘s like having a hangover and drunkenness but also being sick like the flu after doing an intense full body exercise and 10 rounds with Mike Tyson but lost and living on another planet because I’m an alien compared to others who can’t understand my life as

12.   It is a living hell! It hurts every day. The pain moves continuously. Just when you think there is no other place that could hurt, your skin hurts. It’s like a Mack truck hit you over and over again. It takes me hours to shower, put on makeup and dry my hair. When I finish, I have to sit and rest. It’s hard to sleep at night because you can’t find a position that doesn’t hurt.

13.   Pain that intensifies from the head to the toes as if someone were pouring a hot liquid down the throat and moving around the inside of their body. The hardest part is trying to maintain a positive attitude in everything. You never know if one day it will manifest as   IBS  ,   migraines   the next day and Epstein Barr. then depression on top of that. I have more symptoms appearing daily. I have these horrible scars on the skin where the itching became so strong that I broke the skin and made it bleed. It has left terrible marks that seem burned. Ironically, burning comes from within.

14. An   unbearable burning pain in my whole body, which feels as if they set me on fire. Stabbing pain in feet and heels that feels as if you are walking on glass fragments. Take as tired as you have felt and multiply it by 100. The flu builds up 10. Burning pain when the skin is touched. Pain that no medication helps. Pain and fatigue so severe, I can’t work. I almost lost everything for what I worked so hard, waiting 2 years for my disability to be approved. The fact of living with severe and debilitating pain still seems normal, which makes me feel guilty for not being able to work because people treat me like I’m lazy and just don’t want to work.

15. Sandra L –   A thief who has stolen my life. No two days are the same. You never know what will throw you. Every day is something new, a new pain, a new flare. Being bedridden. You are fighting your body just to spend the day. No one should have to live, it doesn’t exist like this. Pain is an unbearable pain that most people cannot handle, we have no choice but to accept it. The medical field has really disappointed us.

16. Tracy W:   Just like someone found the traction cords in all my muscles and tendons, then he climbed them all up the thigh. I feel that a lot and quiet, it will not be a wedge.

17.   Imagine a nylon cord. Turn it against the grain. Do you see those little openings? Pour the crushed glass and the sand inside. Now twist the cable closed. Do you feel the sand that does not allow the nylon to return to the original point? Now imagine that the nylon cord is every muscle fiber, tendon and ligament in your fingers, hands, wrists, ankles, feet and toes. Put on shoes Gloves It is uncomfortable?

Now try to walk. Driving. Standing. Grocery shopping. Sounds awful, doesn’t it? Now imagine that you don’t get relief. Some days add each part of your back to the list. Add nausea. Add migraines. You just want to sleep, but the dream does not come.

Your head feels   cloudy  . You lose words usually in the middle of the sentence. You cannot think clearly. People think you’re stupid, even if you’re not. Add mental health problems to the mix. Do you feel overwhelmed yet? This is a good day. Tomorrow can be worse. You can’t plan this. You do not receive any warning.

18  . When I have a crisis, I feel that the acid flows through me and burns me from the inside out. But on “normal” days I try not to recognize the pain; I only do what I need to do, but it is always back there, preventing me from being everything I know it could be.

The nervous pain is horrible and although I have pain in the neck, hips, shoulders, hands and feet that are quite constant, occasionally I get stabbed in the stomach or chest that comes out of nowhere and I Take your breath away. The last time I felt good was for a whole day when the doctor prescribed me steroids. I had no pain and it was glorious, then it started to burn my stomach and caused me cramps. I had to stop the medicines. However, memory problems and fatigue bother me more. Maybe because my mother has Alzheimer’s and I’m terrified of her coming for me.

19. Janice R –   I feel like I’m tied to two horses and they go in different directions. My arms to one horse, my legs to the other. My plugs feel out of the joint. It gets terrible in moments of outbreaks. Other times it’s not that bad, but still having pain.

20. June J –   I feel that someone is dancing in my brain and choosing what and when I become deaf, dumb and dizzy.

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